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Truly Informed? Understanding What "Clinical Research as a Care Option" Really Means

Today’s potential clinical trial participants are more “informed” than ever about their conditions—having Googled the diagnosis, watched TikTok segments about it, and asked artificial intelligence-driven chatbots for insights—yet more information rarely turns into action. This session focuses on the elements of Clinical Research as a Care Option, built on a foundation often treated as a one-time formality: health literacy, managed deliberately from informed consent through the end of the trial, including for those who screen-fail. When participation is framed not only as a contribution to better science but as a chance to learn more about one’s own body, sites pique interest, build trust, and empower people in ways that drive participation. Through real scenarios and interactive discussion, attendees will pinpoint where the hand-off from “informed” to “engaged” actually happens, and leave with practical ways to manage literacy across the participant journey—turning consent into comprehension, screen failures into trust-building moments, and curiosity into sustained, science-strengthening participation.

CEU: 1.0 ACRP

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May 1

Beyond the Training Log: Building Quality Judgment in Research Staff

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May 1

Across the Aisle: Reaching Common Ground Between Principal Investigators and Institutional Review Boards